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Hi All,
I will be posting this to lots of places, so friends and family may very well get multiple copies of this. I’m also explaining things that my family and close friends probably know already. Sorry about that, but I’m feeling like I want my friends, family and even some acquaintances to know some things about what’s going on with me in the near future. Read more... )
stonebender: (Default)
I often write in this thing when I feel depressed or anxious. Please feel free to skip this post if you have had your fill of self-indulgent whining. I've been in relatively good health this year, but just got a cold a few days ago. So far it's been pretty mild and I hope I'm on the getting better side of it all. The cold isn't that bad, but it really brings back my panic attacks. I cough up anything and my head is telling me I'm going to choke. I'm going to die. Now I'm pretty sure that I'm overreacting, but it still feels real. I do have Xanax, which helps me get to sleep. I guess I just want to tell someone that I am worried. Don't anyone feel they need to do anything about this. Often just saying things out loud or writing them in public helps to get them in perspective. I hate being so afraid.
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I'm listening to The Weepies (a fairly new favorite band for me) playing in a coffee shop in Iowa city over the Internet broadcast by Iowa Public Radio News. I'm reading a New York Times article about a child with cancer and his family. (Trigger warning: it is fairly descriptive of a child going through a very rough time.) The ending is a happy one, but what strikes me from the article is how little we know about anything in this world. I find this comforting, because it means there is so much more to learn and understand in this crazy world.

This is a great day for me.
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Sometimes things are too hard. I think that I am strong enough, or maybe hope I am. So far I have managed, but sometimes it feels overwhelming. I will be fine and I really don't have any cause to complain. Many have it much tougher for much longer. I have so many advantages. I see things coming my way that are massive and uncaring and they will come whether I'm ready or not. I'm not ready, nor will I be, no matter what I do. I must just trust that I will cope or accept failure with grace. Grace I have never had. I want to be the shield, I want to be the support, but I'm sure I will be neither. Perhaps the best I can do is not be an additional puzzle to solve.
stonebender: (Default)
I can't really talk about most of what is bothering me, but every time I start feeling like maybe I have a better handle on things in life. Life makes it absolutely clear I'm not even in the right league. This may be the last time I do many things. Not worth the emotional trauma.
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My sister Linda is getting around the house without the walker. She's still having some balance issues, but she's recovering so much faster than I'd ever expected.

When you drive your wheelchair with your mouth, it really *is* hard to walk and talk at the same time.

My computer died and has now been resurrected, but a large portion of my deathless prose is gone. Someday I'll learn to back-up.

There should be a company/non-profit with gadget savvy folk who one can go to and get them to modify consumer electronics or help mount equipment to my wheelchair or maybe build a little doohicky that's probably only useful to me and maybe a couple hundred other folk. I'm thinking today about a wireless headset that can dial into different frequencies. So I can use it with my cell phone, switch to my computer using Dragon Dictate while listening to music on my headphones. Yes, I know there ways to work some of this already, but I want it in one gadget.

Today, I really missed functioning arms.
stonebender: (Default)
I was looking through Facebook today (which I mostly hate, but everyone seems to be over there) and someone I used to know had posted pictures of a memorial of someone I never knew. The memorial was attended by three or four people that I no longer see. They were connected to a "church" I used to attend and It got me thinking. It's been such a long time since I posted anything of any length I thought I'd meander... )
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I've been feeling not at all myself for a while now. These days, I'm not exactly depressed, but I seem incapable of maintaining a positive self-image for more than an hour or so. Part of this is most certainly my sporadic consumption of my antidepressant. I don't feel like that's all of it though. Even days when things go really well for me (like today for example) I quickly feel guilty, second-guessing what I should've done or what I shouldn't. Somehow I need to figure out how to gain some perspective for at least a thicker skin.

I am managing to ever so slowly get some necessary things done. I found a therapy group for people with disabilities that meets in Berkeley. I'm hoping it will help some.
stonebender: (Default)
Ganked from [personal profile] serene and I kept some of her answers.

Because I haven't done a survey in a long time and I'm bored )

*sigh*

Jun. 16th, 2009 01:48 pm
stonebender: (Default)
Seems like I only post when I'm not happy these days. I try to follow [personal profile] serenejournal's good example concentrating on the good things and I have lots of good things. My family most of all. How I got these amazing women in my life is beyond me. They are such a blessing. My friends, who are the smartest, most talented, socially aware group of people I know. The world is a better place because they exist (and if you think you might be part of this group, you probably are).

It seems like getting through each day is getting harder all the time for me, and I'm sure many, many, others. Personally, I've had lots of "learning experiences" in the last few years. Many I would've preferred avoiding, but we don't get to choose. As an old lefty advocate I've gone from despair to hope and back again. This year has been the most exciting politically and the most depressing. Budgets are being cut everywhere. Our safety net in the United States is becoming nonexistent.

The kind of systemic change I think we need in order to rebuild our social supports seem unlikely to happen. I just don't know what to do.

The music chosen by Rhapsody is particularly appropriate. :-)
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What the hell am I doing with another, blog/journal/community networking/whatever the hell else account? As we used to say in Southern Illinois University Science Fiction Society, I am a herd creature.

If I've done this right this post was written on Dreamwidth )
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Feeling a little overly sensitive today. I think maybe I gotta get serious about finding a counselor. I just can't maintain any perspective these days.

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