Aug. 23rd, 2013

stonebender: (Default)
Reposted from [personal profile] gramina:

I’m walking to raise money for the Alzheimer’s Association, http://alz.org. You can see my personal fundraising page at http://act.alz.org/goto/michelecox.

When my mother was diagnosed with Alzheimer’s, it was the Alzheimer’s Association that gave us detailed information on what to expect, and it’s the Alzheimer’s Association that started the Safe Return program (with Medic Alert), so that she and her husband had matching bracelets and if she wandered, she could be found more quickly. They gave information and help and support to our family when we really needed it.

They also fund research into ways to prevent, ameliorate, or cure Alzheimer’s disease. Since 1982, alz.org — the world’s largest nonprofit funder of Alzheimer’s research — has committed $292 million to more than 2,000 grant proposals.

My mother died of Alzheimer’s disease in May of 2012.

My family tends to be long-lived; I should have had another 20 years of my mother’s wit, compassion, intelligence, insight, and love. Instead, Alzheimer’s stole the last ten years of my mother’s life from her and from her husband, from me, from my sister, and from everyone who knew her.

No one should have to go through that.

By 2050, though, as many as sixteen million people are expected to have Alzheimer’s disease. That’s not just sixteen million lives cut short, or sixteen million minds deprived of their vision, clarity, power, and creativity. It’s sixteen million times all the children, partners, lovers, friends, and caregivers whose lives are catastrophically disrupted, whose hopes and dreams and expectations for their own and their loved one’s future are broken and betrayed.

Please help me help the Alzheimer’s Association continue to fund research and support patients and families. If you can donate, that’s wonderful — the smallest amounts add up faster than you would believe. If you can’t donate, please feel free to signal boost — I appreciate it a lot.

Thank you, so very, very much.
stonebender: (Default)
Because my wheelchair ran out of juice a couple weeks ago, I don't feel like I can trust it. So I've been sticking to home more often than not. My new wheelchair is sitting at Wheelchairs of Berkeley waiting for the part that holds the joystick up to my mouth. I've been waiting for 2 1/2 or 3 weeks for that part so I can actually use my new wheelchair. I've called 3 times trying to get an ETA for the parts with zero information so far. First they were going to call me with an estimated time, but didn't. I called them to let them know they hadn't given me a time and ask them when they would. They said they would call me back and didn't. Called them again, they said they didn't know but if I called them in an hour they would let me know. Called in an hour, they said they didn't know but would call me back. *Sigh*

DragonDictate is working periodically. I'm way behind on a zine I want to write and I'm close to giving up on.

I have completely and utterly screwed up my email and in the process of fixing it I have a feeling I have unintentionally lost lots of needed information. Which is beginning to make me feel like I have lost whatever technological knowledge or ability I had. I'm just feeling stupid around it all right now.

In an effort to be positive. I did have a lovely dinner last night with [personal profile] loracs

Went to BART's Accessibility Advisory Committee (I think that's what they call it) yesterday to comment on their new train car which isn't as accessible as they would like. Found out the car wasn't on the agenda, but I was able to "scope out" the power dynamics of the committee. Now I'm considering getting on it. Did have a lovely time at the Oakland Museum looking at these amazing Native American baskets.

My butt is killing me. I am not a happy boy.

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