I haven't been very communicative lately. Too much. Too fast. I'm not really through grieving for my father, then Betty dies. Another family member was operated on (everything went okay she is healing nicely) and now my sister has been in the hospital too long. She came down with pneumonia and the doctor says it may have been caused by something called Valley Fever. Something I've never heard of before. They haven't confirmed the Valley Fever yet, she most certainly has a very serious case of pneumonia. So serious that she has been on a ventilator has been kept unconscious since she went to the emergency room. I just got a phone call from the hospital saying her doctor needs to talk to a family member about our "options". I am to put it lightly freaked. I will most likely be the one to make any decisions. My sister didn't leave a power of attorney or assign anyone to speak for her when she is ill and unable to speak for herself. I say I will probably be the one to decide because, well, because there is no one else. My father is gone. My mother is a basket case (completely understandably). That leaves the kids, Cheryl the youngest who has been the one the hospital has been communicating with because she's closest. She has made it clear that she isn't up to it. My brother won't help make the decision, so there's me. Linda never made her wishes clear on what she wants in situations like this. I hope I make the right choice for her. Everyone should feel free to comment, but don't anticipate a quick reply from me. I do tend to shut down during these kinds of things. All that goes through my head lately is I was always the one that was supposed to go first.
(no subject)
Sep. 8th, 2010 11:41 pmI have cellulitus again. On antibiotics, but this has been a rough one, Seems like all I can do is read, watch TV, and drool. The fan on my computer died. fortunately I was given a new iPad (more on how how I came to be given one, later). I love this iPad as an ereader. I can access the Internet on it too, but its not so good at posting for me. I am enjoying reading old SF (all the stuff I can get for free.) I also downloaded a new Heinlein biography Robert A. Heinlein: In Dialogue with His Century Volume 1 (1907-1948): Learning Curve by William H. Patterson, Jr. Which I'm enjoying reading, but wouldn't recommend to anyone unless they were pretty hardcore RAH fan.
I finally tried the therapy group for people with disabilities that I wrote about earlier. They are perfectly fine folk, but I don't really think it will work for me. It's basically a support group which is fine but I'm really motivated to work on some recent crap and some continuing stuff that I've been working on most of my life I think.
The facilitators of the group suggested I might get individual counseling from the Berkeley Therapy Institute which is where they work. BTI takes Medi-Cal, so it wouldn't be a huge financial burden. So on their advice I called BTI today. Turns out that they only take straight Medi-Cal. I happen to get both Medi-Cal (the state run program, called Medicaid in most other states in the US). I also get Medicare the federal program. Because I get both, BTI can't accept me as a patient.
I haven't run into this problem too often. When I first came to California I was only covered under Medi-Cal and had absolutely no trouble at all getting the care I needed and the durable medical equipment I depend on to live my life. Quite a few years ago now, my father retired. Because he retired I was required to apply for Medicare. I fought this requirement because at the time (and actually even now, unless the durable medical supplier is pretty savvy about the system) it was almost impossible to get durable medical equipment (things like wheelchairs) or have that equipment repaired when one received both Medi-Cal and Medicare. Both programs have this nifty little requirement that all other insurance must be billed for any services before Medi-Cal or Medicare will cover medical services. This results in Medi-Cal and Medicare bouncing bills from one to the other in a Chip and Dale routine. "I'll pay the bill after you." "No, no I'll pay after you!"
Since I get my wheelchair repaired at Wheelchairs of Berkeley, I haven't had much trouble with this routine, but apparently I will have trouble getting any counseling services. Very discouraging.
The facilitators of the group suggested I might get individual counseling from the Berkeley Therapy Institute which is where they work. BTI takes Medi-Cal, so it wouldn't be a huge financial burden. So on their advice I called BTI today. Turns out that they only take straight Medi-Cal. I happen to get both Medi-Cal (the state run program, called Medicaid in most other states in the US). I also get Medicare the federal program. Because I get both, BTI can't accept me as a patient.
I haven't run into this problem too often. When I first came to California I was only covered under Medi-Cal and had absolutely no trouble at all getting the care I needed and the durable medical equipment I depend on to live my life. Quite a few years ago now, my father retired. Because he retired I was required to apply for Medicare. I fought this requirement because at the time (and actually even now, unless the durable medical supplier is pretty savvy about the system) it was almost impossible to get durable medical equipment (things like wheelchairs) or have that equipment repaired when one received both Medi-Cal and Medicare. Both programs have this nifty little requirement that all other insurance must be billed for any services before Medi-Cal or Medicare will cover medical services. This results in Medi-Cal and Medicare bouncing bills from one to the other in a Chip and Dale routine. "I'll pay the bill after you." "No, no I'll pay after you!"
Since I get my wheelchair repaired at Wheelchairs of Berkeley, I haven't had much trouble with this routine, but apparently I will have trouble getting any counseling services. Very discouraging.
(no subject)
Mar. 2nd, 2010 08:04 pmI've been feeling not at all myself for a while now. These days, I'm not exactly depressed, but I seem incapable of maintaining a positive self-image for more than an hour or so. Part of this is most certainly my sporadic consumption of my antidepressant. I don't feel like that's all of it though. Even days when things go really well for me (like today for example) I quickly feel guilty, second-guessing what I should've done or what I shouldn't. Somehow I need to figure out how to gain some perspective for at least a thicker skin.
I am managing to ever so slowly get some necessary things done. I found a therapy group for people with disabilities that meets in Berkeley. I'm hoping it will help some.
I am managing to ever so slowly get some necessary things done. I found a therapy group for people with disabilities that meets in Berkeley. I'm hoping it will help some.
(no subject)
Feb. 10th, 2010 09:41 pmIts not been my best 10(?) days. Caught a head cold that moved to my chest. I thought I was doing ok. I was managing to keep the panic of possibly choking to death at a not too frenetic level until last Thursday's visit to Alta Bates ER. After determining I didn't have pneumonia, was keeping my O2 levels in the 96, 98 range, but had low potassium. Which was treated by drinking about the nastiest fluid I've ever voluntarily consumed. I ended up back home. I have been getting ever so slowly better, but I haven't enjoyed the night spent coughing. Nor the mornings trying to get all this gunk out of my lungs.
I'm still a little sick and want this cold *over with* already.
dbubley's sister has been really great at helping me get my breathing treatments.
I'm still a little sick and want this cold *over with* already.
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(no subject)
Jun. 18th, 2009 11:13 amNow I know what may have contributed to my horrible mood a couple days ago. I have cellulitis again. On antibiotics and things are getting better. Every time I get this stuff I am pretty pissy and more depressed.
I'm mulling over the idea of participating in some civil disobedience. There are plans being made for a demonstration against our governor and the budget cuts next week. I have been asked whether I wanted to participate in some guerrilla theater or be one of those willing to be arrested. It's been a very long time since I've done this sort of thing. I'm pretty sure I'm not up to guerrilla theater but I feel like I'm not doing enough to fight the devastating cuts our governor is suggesting. So far he is apparently standing firm on balancing the budget only with cuts.
Aside from some systemic changes that I believe need to be made, there have been a couple tax suggestions that make some sense to me. Apparently, the medical marijuana people are volunteering to have their product taxed. I haven't seen any numbers about how much money that would bring in but if they're volunteering...
Another suggestion is to put a tax on oil being extracted in the state. We don't tax it now and we are the only oil producing state that doesn't. I think Chevron can stand the increase. I still think some big changes need to happen to the budget process, but those taxes may get us over the hump.
I'm mulling over the idea of participating in some civil disobedience. There are plans being made for a demonstration against our governor and the budget cuts next week. I have been asked whether I wanted to participate in some guerrilla theater or be one of those willing to be arrested. It's been a very long time since I've done this sort of thing. I'm pretty sure I'm not up to guerrilla theater but I feel like I'm not doing enough to fight the devastating cuts our governor is suggesting. So far he is apparently standing firm on balancing the budget only with cuts.
Aside from some systemic changes that I believe need to be made, there have been a couple tax suggestions that make some sense to me. Apparently, the medical marijuana people are volunteering to have their product taxed. I haven't seen any numbers about how much money that would bring in but if they're volunteering...
Another suggestion is to put a tax on oil being extracted in the state. We don't tax it now and we are the only oil producing state that doesn't. I think Chevron can stand the increase. I still think some big changes need to happen to the budget process, but those taxes may get us over the hump.
(no subject)
Apr. 17th, 2009 11:39 amGood news: I have a new 500 GB Hard drive!
Bad news: I'm not sure when I'll get it hooked up.
Good news: I have a good new morning attendant! I'd say great, but its early (one week) and it feels a little direspectful to Stacy to say great yet.
Bad news: I have Cellulitis again.
Good news: Anti-biotics in the house!
Bad news: I'm not sure when I'll get it hooked up.
Good news: I have a good new morning attendant! I'd say great, but its early (one week) and it feels a little direspectful to Stacy to say great yet.
Bad news: I have Cellulitis again.
Good news: Anti-biotics in the house!
Help publicize late stage Lyme Disease
Mar. 5th, 2009 09:27 pmvia
wild_irises, who knows
goodbadgirl
Apparently Oprah is thinking about doing a show about Lyme Disease. Because it's expensive to treat, the US government doesn't want to admit that it exists.
More info:
http://goodbadgirl.livejournal.com/344467.html
http://goodbadgirl.livejournal.com/344625.html excerpt:
Here is what I'm asking you:
1) Re-post my original request and this post if you want to. Tell your friends, your co-workers, your family members. Cutting and pasting has never been easier or likely to help more people.
2)Register on Oprah.com and add your voice to the forum. 10 minutes or less of your time can make an enormous difference here.
Here is how:
Here is the link where you can post a message - if you are already a member of Oprah's community.
http://tinyurl.com/bqo8vo
If you are not a member of the Oprah community, you will need to sign up first:
click on this link to sign up:
https://www.oprah.com/mbr/mbr_new_profile.jsp
Once you have filled out the appropriate info -- easy stuff, name, username, email address, birth year -- then you will get an email to your email address: You'll get an email from Oprah's web people sending you an activation link that you will need to click on in order to get started. Then you can click on the above link and post your comments.
3)Educate yourselves and your loved ones about Lyme disease. How many of you on my relatively short friend's list suffer from "mysterious" and "hard to diagnose" auto-immune disorders and chronic infections? Too many of you. How many of your stories are familiar to me? Way, way too many.
Pass it on.
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Apparently Oprah is thinking about doing a show about Lyme Disease. Because it's expensive to treat, the US government doesn't want to admit that it exists.
More info:
http://goodbadgirl.livejournal.com/344467.html
http://goodbadgirl.livejournal.com/344625.html excerpt:
Here is what I'm asking you:
1) Re-post my original request and this post if you want to. Tell your friends, your co-workers, your family members. Cutting and pasting has never been easier or likely to help more people.
2)Register on Oprah.com and add your voice to the forum. 10 minutes or less of your time can make an enormous difference here.
Here is how:
Here is the link where you can post a message - if you are already a member of Oprah's community.
http://tinyurl.com/bqo8vo
If you are not a member of the Oprah community, you will need to sign up first:
click on this link to sign up:
https://www.oprah.com/mbr/mbr_new_profile.jsp
Once you have filled out the appropriate info -- easy stuff, name, username, email address, birth year -- then you will get an email to your email address: You'll get an email from Oprah's web people sending you an activation link that you will need to click on in order to get started. Then you can click on the above link and post your comments.
3)Educate yourselves and your loved ones about Lyme disease. How many of you on my relatively short friend's list suffer from "mysterious" and "hard to diagnose" auto-immune disorders and chronic infections? Too many of you. How many of your stories are familiar to me? Way, way too many.
Pass it on.
(no subject)
Feb. 20th, 2009 10:34 pmWhat a day. Lived through a very long panic attack. I called
loracs in the midst of it. She stayed with me over the phone. Then
serenejournal IM'ed me. She dropped everything to come be with me. They are such wonderful women and I am very lucky to have them in my life.
I wish I was feeling healthier. The cold is definitely going away, but I can't work up much enthusiasm for my birthday.
dbubley is back at the rehab center, but she's still feeling nauseous and has just an awful roommate. She's not having fun.
loracs is exhausted.
serenejournal is dealing with so much. *sigh*
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I wish I was feeling healthier. The cold is definitely going away, but I can't work up much enthusiasm for my birthday.
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(no subject)
Feb. 17th, 2009 03:34 pmI just wanted to thank everyone who sent me a Valentine. They were all very sweet and made my day. I am doing a lot better physically. I have my appetite back. I still have some congestion, but nothing like I did a couple days ago. I'm still pretty weak. I just don't bounce back like that I use to you know. :-)
The last I heard
dbubley is eating solid food again and seems to be doing well with that. If things continue to go well she may be back to the rehab center pretty soon.
loracs's seems to be close to normal. She still has a bit of a cough. Its off to Pippin's last puppy class tonight. We may just survive this after all!
The last I heard
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serene update
Nov. 8th, 2007 08:40 pmFor those who don't already know.
serenejournal went into surgery about 9:30 this morning Pacific Time. She got out of recovery at about 2:30pm. Her surgeon said that the surgery was very successful. The tumor was large, but upon visual inspection everything looked fine. It will be a couple of days before we're absolutely certain but things look good. By the time I left the hospital at 5. She was mostly recovered from the anesthesia. Her voice sounds completely normal although it's difficult for her to speak. She was drinking water, eating some sherbet like frozen desert, and replying to a bunch of text messages. They're keeping her in the hospital tonight, but she is expected to be home tomorrow. By then I'm sure she will be replying to all your good wishes on her own. It's been a long day. Thank you all.
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(no subject)
Jul. 21st, 2007 10:05 pmAs you may have read elsewhere I had an interesting day yesterday. ( Details on my summer trip to the hospital. )